Support groups for autoimmune disorders

Acute Disseminated Encephalomyelitis (ADEM)

ADEM Survivors Network Discussion Forum

Contact a Family, a UK-wide charity providing support, advice and information for families with disabled children has a list of people with ADEM wishing to make contact. Making Contact Org linking families.

 AIH Support Group for autoimmune hepatitis has a support forum and a facebook group.


Ankylosing Spondylitis International Federation

 
Spondylitis Association of America forums

Ankylosing Spondylitis Support Group at Daily Strength

 The APS Friends and Support Forum
http://www.apsforum.com 
This is an open forum for people who have Antiphospholipid Antibody Syndrome, friends, family and caregivers. Please feel free to participate in any of the discussions listed, browse around or post your own new discussion.

Behcet's Chat room at American Behcets Disease Association created for anyone that is dealing with Behcet's Disease. The room is called "behcets". All are welcome to share, learn, support, cry, laugh, and/or just get to know each other. The room was created for the sole benefit and use of Behcet's patients and their caregivers, friends, family members, and interested physicians.

Bechet's Syndrome Society membership forum  Discuss issues relating to Behçet’s syndrome

 

Crohns Disease Forums A community of people whose lives are affected by Crohn's Disease, Ulcerative Colitis, other forms of Inflammatory Bowel Disease (IBD), Diverticulitis and all other gastrointestinal and bowel related diseases and conditions.

Healing Well Forum Crohns - you will need to register before you will be allowed to post on the forum or login to chat, but you are free to browse the forums by selecting from the listing below. Has forums for many conditions.

Crohn's Disease & Ulcerative Colitis Support Group at Daily Strength

Dermatitis herpetiformis sufferers support has unfortunately been closed

 Hypothyroidism Support Group at Daily Strength

Thyroid UK - a UK thyroid support group

Thyroid-Disease.org.UK -a UK thyroid support group

 

Neuromyotonia/Isaacs syndrome - Discussion - NORD Rare Disease

Isaac's Syndrome Neuromyotonia CFS World Forums Chat Centre

Multiple Sclerosis (MS)

MSAAmerica support groups provide safe environments where people, who have or are affected by multiple sclerosis, gather to learn, share, build friendships, and help themselves and others. Support groups usually meet once a month and draw from a certain geographic region.

National MS Society - Connect with others in America online whose lives are affected by multiple sclerosis, whether it be from living with MS, caring for a loved one, or supporting the MS cause.

 Myositis at Daily Strength Forums

Myositis Directory - info and personal stories about Myositis

 

Opsoclonus-myoclonus syndrome (OMS) mailing list to share imformation, treatment and options.

  • An active OMS Family Network Support Site
  • Dancing eyes syndrome (UK name for OMS support and information to families of children with Dancing Eye Syndrome.
  • Primary Biliary Cirrhosis (PBC) also called Hanot Syndrome pbc Foundation PBCers.

     

    SARCOID NETWORKING ASSOCIATION has newsletters and support groups in England, Germany, Japan and the United States.

    Sarcoidosis Support Group at Daily Strength

     Scleroderma Support Group at Daily Strength

     Sjogren's World Forum Discussion and chat for people with Sjogren's Syndrome or their partners. Topics include Breathing, Fatigue, Joints, muscles, pain, tests and diagnosis.

    Sjogren's Syndrome Support Group on Daily Strength

     

    Takayasu's Arteritis Support Group where patients, families, friends and medical professionals can share their questions about and experiences with Takayasu's arteritis.

    VASCULITIS

    The Vasculitis Foundation
    (formerly The Wegener's Granulomatosis Association and Wegener's Granulomatosis Support Group, Inc)

    French Vasculitis Study Group (in French)

    Central Nervous System Vasculitis Foundation aim to achieve Awareness, Education, and Emotional Support through group sharing.

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