Acute Disseminated Encephalomyelitis (ADEM)

ADEM Survivors Network Discussion Forum

Contact a Family, a UK-wide charity providing support, advice and information for families with disabled children has a list of people with ADEM wishing to make contact. Making Contact Org linking families.

 AIH Support Group for autoimmune hepatitis has a facebook group.

 The APS Friends and Support Forum
This is an open forum for people who have Antiphospholipid Antibody Syndrome, friends, family and caregivers. Please feel free to participate in any of the discussions listed, browse around or post your own new discussion.

Behcet's facebook group at American Behcets Disease Association for anyone that is dealing with Behcet's 

Bechet's Syndrome Society membership forum  Discuss issues relating to Behçet’s syndrome


Crohns Disease Forums A community of people whose lives are affected by Crohn's Disease, Ulcerative Colitis, other forms of Inflammatory Bowel Disease (IBD), Diverticulitis and all other gastrointestinal and bowel related diseases and conditions.

Healing Well Forum Crohns - you will need to register before you will be allowed to post on the forum or login to chat, but you are free to browse the forums by selecting from the listing below. Has forums for many conditions.

Crohn's Disease & Ulcerative Colitis Support Group at Daily Strength

Dermatitis herpetiformis sufferers support has unfortunately been closed

 Hypothyroidism Support Group at Daily Strength

Thyroid UK - a UK thyroid support group -a UK thyroid support group


Neuromyotonia/Isaacs syndrome - Discussion - NORD Rare Disease

Multiple Sclerosis (MS)

MSAAmerica support groups provide safe environments where people, who have or are affected by multiple sclerosis, gather to learn, share, build friendships, and help themselves and others. Support groups usually meet once a month and draw from a certain geographic region.

National MS Society - Connect with others in America online whose lives are affected by multiple sclerosis, whether it be from living with MS, caring for a loved one, or supporting the MS cause.

 Myositis at Daily Strength Forums

Myositis Directory - info and personal stories about Myositis

Opsoclonus-myoclonus syndrome (OMS) mailing list to share imformation, treatment and options.

  • An active OMS Family Network Support Site
  • Dancing eyes syndrome (UK name for OMS support and information to families of children with Dancing Eye Syndrome.
  • Primary Biliary Cirrhosis (PBC) also called Hanot Syndrome pbc Foundation PBCers.

     Psoriasis: Support Groups - Open Directory Project

    Psoriasis Association UK

    Psoriasis and Psoriatic Arthritis Alliance facebook


    SARCOID NETWORKING ASSOCIATION has newsletters and support groups in England, Germany, Japan and the United States.

    Sarcoidosis Support Group at Daily Strength

     Scleroderma Support Group at Daily Strength

     Sjogren's World Forum Discussion and chat for people with Sjogren's Syndrome or their partners. Topics include Breathing, Fatigue, Joints, muscles, pain, tests and diagnosis.

    Sjogren's Syndrome Support Group on Daily Strength


    Takayasu's Arteritis Support Group where patients, families, friends and medical professionals can share their questions about and experiences with Takayasu's arteritis.


    The Vasculitis Foundation
    (formerly The Wegener's Granulomatosis Association and Wegener's Granulomatosis Support Group, Inc)

    French Vasculitis Study Group (in French)

    Central Nervous System Vasculitis Foundation aim to achieve Awareness, Education, and Emotional Support through group sharing.

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